Development of vasculitis registry in Poland as a part of the collaborative network to establish European vasculitis registry

Program

June 6, 2015 Konferencja w języku angielskim
9.15–9.30	Jacek Musiał Welcome and opening remarks
Session I	Common clinical areas (9.30–12.30) National registries in European countries – current experience and problems Chairpersons: Maria Majdan, Piotr Głuszko, Władysław Sułowicz
9.30–9.55	Vladimir Tesař, Zdenka Hrušková (Prague, Czech Republic) Czech Registry of ANCA-Associated Vasculitides
9.55–10.25	Helena Canhao, Cristina Ponte (Lisbon, Portugal) ReumaPT/Vasculitis - vasculitis database within The Portuguese Register of Rheumatic Diseases
10.25–10.50	Loic Guillevin (Paris, France) French Vasculitis Study Group
10.50–11.15	Coffee Break
	Chairpersons: Witold Tłustochowicz, Marian Klinger, Agnieszka Perkowska-Ptasińska
11.15–11.40	Julia Holle (Bad Bramstedt, Germany) German Vasculitis Register
11.40–12.05	Jacek Musiał (Krakow, Poland) Initiative to establish Polish Vasculitis Registry
12.05–12.30	General discussion (National registries – problems, challenges, solutions)
12.30–13.30	Lunch break
Session II	Initiative to create the European vasculitis registry (13.30–18.00) Chairpersons: Jan Duława, Marek Brzosko, Jolanta Małyszko
13.30–13.55	Raashid Luqmani (Oxford, UK) Better together – development of the European Vasculitis Registry and perspectives for the collaborative research projects
13.55–14.20	Mark Little (Dublin, Ireland) How can we work together – data access and usage based on United Kingdom and Ireland Vasculitis Registry (UKIVAS)
14.20–14.45	Neil Basu (Aberdeen, UK) Harmonization of the datasets – is it feasible?
14.45–15.10	Raashid Luqmani, Jan Sznajd (Oxford, UK) How should we assess vasculitis? – standardisation of training and clinical assessment
15.10–15.30	Coffee Break
15.30–17.00	Round table discussion
	Moderators: Mark Little, Eugeniusz Kucharz
17.15–18.15	Polish Vasculitis Study Group Initiative meeting